The Leaflet: Solutions for Rare Diseases Hindered by the Food and Drug Administration

Published October 4, 2020

One Mother’s Journey to Save Her Son

Christina Herrin interviews Amber Freed: mother, activist, and founder of SLC6A1. Amber’s son suffers from a rare disease and the Freed family, like so many others, is desperately searching for a cure for his condition. Their discussion focuses on the many bureaucratic obstacles that prevent patients from accessing innovative therapies not yet approved by the Food and Drug Administration. Listen Now. 

Latest Bullying and School Violence Survey Shows Students Need Child Safety Accounts

In his latest Research & Commentary, Tim Benson reviews the results of the biennial Youth Risk Behavior Surveillance System from the Centers for Disease Control and Prevention. The report highlights the pressing need for child safety accounts due to the fact that far too many public schools are woefully incapable of ensuring student safety. Read Now.

Review of the National Ambient Air Quality Standards for Ozone 

David Stevenson, director of the Center for Energy & Environment at the Caesar Rodney Institute, authored a coalition letter to the Environmental Protection Agency, which shows that the National Ambient Air Quality Standards for Ozone adopted in 2015 were a mistake, which should be eliminated. Read full Coalition letter here. 

COVID-19 State-Specific Economic Response Consulting

Are you searching for help with state-specific solutions to undo the damage wrought by governor’s executive orders and excessive lockdowns in response to the coronavirus pandemic? Contact State Government Relations Manager, Samantha Fillmore to learn more about solutions for economic reopening.

​​​​​Governors, Not Gods: Reining-In Redux

Heartland hosted a Zoom webinar to discuss how state legislators can curb the increasing abuse of executive powers given to governors across the nation. Additionally, Heartland staff created a document outlining actionable items lawmakers can use to amend state statutes that give governors too much power.
Read Guidelines Here.
Watch Recording Here.

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